Parenting Stress and Quality Of Life Of Special Need Chidren’s Parents: A School Health Survey Among Disabled Children in Badean Bondowoso

STRES PENGASUHAN DENGAN KUALITAS HIDUP PADA ORANG TUA DENGAN ANAK BERKEBUTUHAN KHUSUS

  • Muhammad Cholilurrohman Hadi Universitas Jember
  • Tantut Susanto Department of community, family, and geriatric nursing, Faculty of Nursing, Universitas Jember
  • Kholid Rosyidi Muhammad Nur Universitas Jember

Abstract

The family with special need children experience children’s dependency behavior. This situations related to parenting stress which affected parental quality of life. The objective of this study was to examine the correlation characteristic of parents and parenting stress and parental quality of life among special need children’s parents. A cross sectional study design conducted among 52 parents with special need children in School of Disabled Children in Badean Bondowoso. A self-administered questionnaire including the Alabama Parenting Questionnaire and the World Health Organization Quality of Life-BREF Indonesian version were used to assess parenting stress; and parental quality of life, respectively. Pearson Product Moment and Spearman Rank was performed to answer the objective of this study. The results showed that, there were no correlation between parenting stress and parental quality of life of special need children’s parents (p >0.05). However, length of disability correlated with parenting stress (r = 0.339; p = 0.014). Meanwhile; parent’s gender (Z = -2.089; p = 0.037), special need children’s gender (Z = -2.102; p = 0.036), and number of childrens (r = -0.297; p = 0.033) were correlated with parental quality of life. This study concluded that characteristic of parents and children with special needs correlated with parental quality of life. Therefore, adaptive parenting environment should implement to reduce parenting stress.

 

Author Biography

Tantut Susanto, Department of community, family, and geriatric nursing, Faculty of Nursing, Universitas Jember

Family and Community Health Nursing Department, School of Nursing, Universitas Jember

Research interest on adolescent health, reproductive health, family and community health nursing, school health, and occupational health nursing

References

Badan Pusat Statistik. (2012). Penduduk Indonesia menurut Provinsi 1971, 1980, 1990, 1995, 2000, dan 2010. Indonesia : Penulis. Diperoleh dari : https://www.bps.go.id/ pada 23 September 2018.
Bariroh, S. (2018). The Influence of Parents ’ Involvement on Children with Special Needs ’ Motivation and Learning Achievement. International Education Studies, 11(4), 96–114. https://doi.org/10.5539/ies.v11n4p96
Desiningrum, D. R. (2016). Psikologi Anak Berkebutuhan Khusus. Yogyakarta : Psikosain.
Gomez, I. N., & Gomez, M. G. (2013). Quality of life of parents of Filipino children with special needs. Education Quarterly, 71(2), 390–398.
Kazmi, S. F., Perveen, S., Karamat, S., & Khan, A. M. (2014). Depression and Quality of Life of Parents of Disabled Children, 10(3), 125–127.
Kementerian Kesehatan Republik Indonesia. (2012). Infodatin (Pusat Data dan Informasi Kementerian Kesehatan Republik Indonesia) Penyandang Disabilitas pada Anak. Indonesia : Penulis. Diperoleh dari http://www.depkes.go.id/download.php?file=download/pusdatin/infodatin/infodatin_disabilitas.pdf pada 6 September 2018.
Kholifah, S. N., Nursalam, Adriani, M., Ahsan, & Susanto, T. (2016). Structural Model for Public Health Nurses ’ Performance in the Implementation of Family Nursing Based on Nursing Relational Capital. International Journal of Caring Sciences, 9(1), 914–926.
Kvarme, L. G., Albertini-Früh, E., Brekke, I., Gardsjord, R., Halvorsrud, L., & Liden, H. (2016). On duty all the time: Health and quality of life among immigrant parents caring for a child with complex health needs. Journal of Clinical Nursing, 25(3-4), 362–371. https://doi.org/10.1111/jocn.13056
Maguin, E., Nochajski, T., Dewit, D., & Safyer, A. (2016). Examing the Validity of the Adapted Alabama Parenting Questionnaire Parent Global Report Version. Psychol Assess, 28(5), 613–625. https://doi.org/10.1037/pas0000214
Moawad, G. E. L. N. A. (2012). Coping strategies of mothers having children with special needs. Journal of Biology, Agriculture and Healthcare, 2(8), 77–84.
Murray, M. M., Handyside, L. M., Straka, L. A., & Arton-titus, T. V. (2013). Parent Empowerment : Connecting With Preservice Special Education Teachers. School Community Journal, 23(1), 145–168.
Prakoso, A. (2018). Adaptive Parenting. Jakarta : PT Elex Media Komputindo.
Skevington, S.M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Klover Academic Publishers, (13), 299–310. https://doi.org/10.1093/nq/s1-XI.290.387-b
Smith, A. M., & Grzywacz, J. G. (2014). Health and well-being in Midlife Parents of Children with Special Health Needs. Fam Syst Health, 32(3), 303–312. https://doi.org/10.1037/fsh0000049.Health
Susanto, T., Yunanto, R. A., Rasny, H., Susumaningrum, La. A., & Nur, K. R. M. (2019). Promoting Children Growth and Development : A community ‐ based cluster randomized controlled trial in rural areas of Indonesia. Public Health Nursing, 00(April), 1–11. https://doi.org/10.1111/phn.12620
UNICEF. (2014). Parenting in the Best Interests of the Child and Support to Parents of the Youngest Children with Disabilities.
WHO. (2004). The World Health Organization Quality of Life (WHOQOL)-BREF. Swiss : Penulis. Diperoleh dari : http://www.who.int/substance_abuse/research_tools/en/indonesian_whoqol.pdf pada 27 Agustus 2018.
WHO. (1996). WHOQoL-BREF, Introduction, Administration, Scoring and Generic Version of The Assessment. Diperoleh dari : https://www.who.int/mental_health/media/en/76.pdf pada 27 Agustus 2018.
Published
2020-02-07
How to Cite
HADI, Muhammad Cholilurrohman; SUSANTO, Tantut; NUR, Kholid Rosyidi Muhammad. Parenting Stress and Quality Of Life Of Special Need Chidren’s Parents: A School Health Survey Among Disabled Children in Badean Bondowoso. NurseLine Journal, [S.l.], v. 4, n. 2, p. 84-93, feb. 2020. ISSN 2541-464X. Available at: <https://jurnal.unej.ac.id/index.php/NLJ/article/view/11118>. Date accessed: 08 may 2024. doi: https://doi.org/10.19184/nlj.v4i2.11118.
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Articles

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